Scientific Publications Database
Article Title: Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease (Can-SOLVE CKD): Form and Function.Authors: Levin, Adeera; Adams, Evan; Barrett, Brendan J; Beanlands, Heather; Burns, Kevin D; Chiu, Helen Hoi-Lun; Chong, Kate; Dart, Allison; Ferera, Jack; Fernandez, Nicolas; Fowler, Elisabeth; Garg, Amit X; Gilbert, Richard; Harris, Heather; Harvey, Rebecca; Hemmelgarn, Brenda; James, Matthew; Johnson, Jeffrey; Kappel, Joanne; Komenda, Paul; McCormick, Michael; McIntyre, Christopher; Mahmud, Farid; Pei, York; Pollock, Graham; Reich, Heather; Rosenblum, Norman D; Scholey, James; Sochett, Etienne; Tang, Mila; Tangri, Navdeep; Tonelli, Marcello; Turner, Catherine; Walsh, Michael; Woods, Cathy; Manns, Braden
Journal: Canadian journal of kidney health and disease Volume 5
Date of Publication:2018
Abstract:
PURPOSE OF REVIEW: This article serves to describe the Can-SOLVE CKD network, a program of research projects and infrastructure that has excited patients and given them hope that we can truly transform the care they receive.ISSUE: Chronic kidney disease (CKD) is a complex disorder that affects more than 4 million Canadians and costs the Canadian health care system more than $40 billion per year. The evidence base for guiding care in CKD is small, and even in areas where evidence exists, uptake of evidence into clinical practice has been slow. Compounding these complexities are the variations in outcomes for patients with CKD and difficulties predicting who is most likely to develop complications over time. Clearly these gaps in our knowledge and understanding of CKD need to be filled, but the current state of CKD research is not where it needs to be. A culture of clinical trials and inquiry into the disease is lacking, and much of the existing evidence base addresses the concerns of the researchers but not necessarily those of the patients.PROGRAM OVERVIEW: The Canadian Institutes of Health Research (CIHR) has launched the national Strategy for Patient-Oriented Research (SPOR), a coalition of federal, provincial, and territorial partners dedicated to integrating research into care. Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease (Can-SOLVE CKD) is one of five pan-Canadian chronic kidney disease networks supported through the SPOR. The vision of Can-SOLVE CKD is that by 2020 every Canadian with or at high risk for CKD will receive the best recommended care, experience optimal outcomes, and have the opportunity to participate in studies with novel therapies, regardless of age, sex, gender, location, or ethnicity.PROGRAM OBJECTIVE: The overarching objective of Can-SOLVE CKD is to accelerate the translation of knowledge about CKD into clinical research and practice. By focusing on the patient's voice and implementing relevant findings in real time, Can-SOLVE CKD will transform the care that CKD patients receive, and will improve kidney health for future generations.OBJECTIF DE LA REVUE: Le present article decrit le reseau Can-SOLVE CKD, un reseau base sur un programme de projets et dinfrastructures de recherche qui ont souleve lenthousiasme des patients et qui nourrissent leur espoir de voir une reelle reforme des soins quils recoivent.CONTEXTE: Linsuffisance renale chronique (IRC) est un trouble complexe qui affecte plus de quatre millions de Canadiens et qui engendre au systeme de sante canadien des couts annuels de lordre de 40 milliards de dollars. Les donnees probantes sous-tendant les soins en IRC sont rares, et dans les branches oo ces donnees existent, leur integration a la pratique clinique se montre insuffisante. Ces problemes sont aggraves dabord par la grande variabilite du pronostic de la maladie, puis par la difficulte de prevoir quels patients seront les plus susceptibles de developper des complications. Ces lacunes de connaissances et de comprehension de lIRC doivent manifestement etre comblees; cependant, force est de constater que la recherche actuelle sur lIRC est inadequate. Outre labsence dune culture medicale qui encourage les essais cliniques, les donnees recueillies rejoignent les preoccupations des chercheurs sans necessairement refleter celles des patients.PRESENTATION DU PROGRAMME: Lancee par lInstitut de recherche en sante du Canada (IRSC), la Strategie de recherche axee sur le patient (SRAP) consiste en une coalition de partenaires federaux, provinciaux et territoriaux visant lintegration des resultats de la recherche dans les soins prodigues aux patients. Le reseau Can-SOLVE CKD (Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease) est lun des cinq reseaux de recherche pancanadiens sur les maladies chroniques soutenus par la SRAP. Lobjectif du reseau Can-SOLVE CKD est tripartite : on souhaite que, dici 2020, tous les Canadiens atteints dIRC (ou a haut risque de developper la maladie) 1- recoivent les meilleurs soins; 2- obtiennent des resultats de sante optimaux; 3- aient loccasion de participer a des etudes cliniques pertinentes (et ce, sans egard a leur age, leur sexe, leur ethnicite ou leur lieu de residence).OBJECTIF DU PROGRAMME: Lobjectif principal du reseau Can-SOLVE CKD est daccelerer lapplication des connaissances sur lIRC, tant en recherche quen pratique clinique. En sinteressant aux preoccupations des patients et en appliquant en temps reel les resultats pertinents de la recherche, Can-SOLVE CKD transformera la facon dont seront soignes les patients atteints dIRC et ameliorera la sante renale globale des generations futures.