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Senior Scientist, Clinical Epidemiology, Ottawa Hospital Research Institute
Tier 1 Canada Research Chair in Health Care Consumer Decision Support
Professor, School of Nursing, Faculty of Health Sciences, University of Ottawa
Professor, Epidemiology and Community Medicine, Faculty of Medicine, University of Ottawa
Biographical Sketch
Dr. O'Connor is a world leader in patient decision aids for options with benefit/harm profiles that patient value differently. Her contributions include: a conceptual framework for managing decisional conflict; over 30 patient decision aids; a widely used evaluation measure of decisional conflict; the first systematic review of trials of patient decision aids, and several knowledge translation interventions for implementing patient decision support. Internationally, Dr. O'Connor has projects in the U.S, U.K, and Chile. She leads the International Cochrane Collaboration team that summarizes trials of patient decision aids (over 62) and that updates a global inventory of evaluated patient decisions aids (over 500). Dr. O'Connor co-leads a 14 country international consensus process on standards for developing and evaluating patient decision aids (IPDAS). She is a member of the Canadian Academy of Health Sciences and has been recognized for her work by awards such as the Society for Medical Decision Making John Eisenberg Award for Exemplary Leadership.
Research
Development and evaluation of decision aids
Development and testing of decision support/evaluation methods
Educating health practitioners/clinicians and consumers in shared decision making
Decisional Conflict Models
Research examining factors influencing individuals' health decisions and the efficacy of consumer decision aids to promote effective decision making. Decisions include: Cox2 Inhibitors for osteoarthritis, biologics for rheumatoid arthritis, early stage seminoma, CF lung transplantation, influenza immunization, vaginal birth after caesarean, twin births, caregivers' perspectives re location of care for terminally ill family member, and parents' care options for babies with extremely low birth-weight, and other decisions relevant to ultimately improving our understanding of how patients make decisions affecting their health and what clinicians/practitioners can do to promote effective decision making.
Selected Honours and Awards
2006 - Health Innovation Award, Ottawa Life Sciences Council
2005 - Excellence in Research Award, University of Ottawa
2004 - John M. Eisenberg Award in Recognition of Exemplary Leadership in the Practical Application of Medical Decision Making Research, Society for Medical Decision Making
2003 - Women of Distinction Award in the Private Sector, Research & High Tech, YMCA-YWCA
Selected Affiliations
2007 - Co-lead faculty and organizer, Summer Institute for Informed
Patient Choice (SIIPC), Dartmouth Medical School, Hanover, NH.
2005- Fellow, Canadian Academy of Health Sciences
2004- Chair, Inaugural International Patient Decision Aids Standards Collaboration
2003- Member, Policy Advisory Board, Journal of Clinical Epidemiology
2003-2006 Member, The National Expert Committee for Interdisciplinary Education for Collaborative Patient-Centered Practice, Health Canada
2001- Commissioner, Center for Information Therapy, Healthwise, Inc. USA
1998- Member, Sigma Theta Tau International Nursing Honour Society, University of Ottawa
1997- Member, Editorial Board, Health Expectations
1997- Member, Cochrane Collaborative Review Group
1984- Member, Society for Medical Decision Making
Selected Publications
Publications in Press/Accepted
Wennberg J, O'Connor A, Dale E, Weinstein J. Extending the Pay-for-Performance Agenda: Part One. How Medicare Can Improve the Quality of Patient Decision Making and Reduce Unnecessary Care. Health Affairs (Accepted)
O'Connor A, Bennett C, Stacey D, Barry M, Col NF, Eden KB, Entwistle V, Fiset V, Holmes-Rover M, Khangura S, Llewellyn-Thomas H, Rovner D. Do patient decision aids meet effectiveness criteria of the International Patient Decision Aid Standards Collaboration? A Systematic Review and Meta-analysis. Med Dec Making (Accepted).
Légaré F, Graham ID, O'Connor AM, Aubin M, Baillargeon L, Leduc Y, Maziade J. Prediction of health professionals' intention to screen for decisional conflict in clinical practice. Health Expectations. (Accepted)
Holmes-Rovner M, Nelson WL, Pignone M, Elwyn G, Rovner DR, O'Connor AM, Coulter A, Correa-de-Araujo R. Are patient decision aids the best way to improve clinical decision-making? Report of the IPDAS Symposium. Medical Decision Making (Accepted)
Col NF, Ngo L, Fortin JM, Goldberg RJ, Cyre M, O'Connor AM. Can computerized decision support help patients make complex treatment decisions? A randomized controlled trial of an individualized menopause decision aid.. Medical Decision Making (Accepted)
Stacey D, Murray MA, Dunn S, Menard P, O'Connor A. Decision Coaching to Support Shared Decision Making: A framework, evidence, and implications for nursing practice, education, and policy. Worldviews on Evidence-Based Nursing (In Press)
Key Selected Publications
O'Connor A, Wennberg J, Légaré F, Llewellyn-Thomas H, Moulton B, Sepucha K, Sodano A, Staples King J. Towards the Tipping Point: Accelerating the diffusion of decision aids that help patients to weigh benefits versus risks. Health Affairs 2007; 26(3):716-725.
Elwyn G, O'Connor A, Stacey D, Volk R, Edwards A, Coulter A, Thomson R, Barratt A, Barry M, Bernstein S, Butow P, Clarke A, Entwistle V, Feldman-Stewart D, Holmes-Rovner M, Llewellyn-Thomas H, Moumjid N, Mulley A, Ruland C, Sepucha K, Sykes A, Whelan T, The International Patient Decision Aids Standards (IPDAS) Collaboration. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. British Medical Journal. 2006 Aug 26;333(7565):417.
O'Connor AM, Elwyn G et al. Reaching Consensus on International Patient Decision Aid Standards (IPDAS) for their Development and Evaluation. Top paper at Society for Medical Decision Making, Atlanta, GA. Oct. 17-20, 2004.
O'Connor AM, Stacey D, Rovner D et al. Decision aids for people facing health treatment or screening decision (Cochrane Review). In: The Cochrane Library, Issue 3, 2001. Oxford: Update software.
O'Connor A, Rostom A, Fiset V, Tetroe J, Entwistle V, Llewellyn-Thomas H, et al. Decision aids for patients facing health treatment or screening decisions: A Cochrane systematic review. BMJ 1999;319:731-4.
O'Connor A, Tugwell P, Wells G, et al. A decision aid for women considering hormone therapy after menopause: Decision support framework and evaluation. Patient Educ Couns. 1998;33(3):267-79.
O'Connor AM. Validation of a decisional conflict scale. Medical Decision Making 1995;15(1):25-30.
Most Recent Publications (2004 - 2006)
Metcalfe KA, Poll A, O'Connor A, Gershman S, Armel S, Finch A, Demsky R, Rosen B and Narod SA. Development and testing of a decision aid for breast cancer prevention for women with a BRCA1 or BRCA2 mutation. Clin Genet 2007, 72:208-217.
Kristjansson E, Tugwell P, Wilson Andrew J, Brooks Peter M, Driedger S. Michelle, Gallois C, O'Connor AM, Qualman A, Santesso N, Wale J, Wells George A. Development of the effective musculoskeletal consumer scale. J Rheumatol. 2007; 34(6):1392-400.
Graham I, Logan J, Bennett C, Presseau J, O'Connor A, Mitchell S, Tetroe J, Cranney A, Hebert P, Aaron S. Physicians' intentions and use of three patient decision aids. BMC Medical Informatics and Decision Making 2007, 7:20.
Stacey D, Bennett C, O'Connor A. Patient decision aids: tools to enhance quality of healthcare decisions. Clinical, Nursing & Patient Care/Hospital Healthcare Europe 2006/7. 2006 Dec;C55-C57.
Stacey D, O'Connor A, Graham I, Pomey MP. Randomized controlled trial of the effectiveness of an intervention to implement evidence-based patient decision support in a nursing call centre. Journal of Telemedicine and Telecare 2006; 12:410-415.
Santesso N, Maxwell L, Tugwell P, Wells G, O’Connor A, Judd M, Buchbinder R. Knowledge Transfer to Clinicians and Consumers by the Cochrane Musculoskeletal Group. J. Rheumatol. 2006 Nov; 33(11):2312-8.
Doull M, O’Connor A, Jacobsen MJ, Robinson V, Cook L, Nyamai-Kisia C, Tugwell P. Investigating the decision making needs of HIV-positive women in Africa using the Ottawa Decision Support Framework: Knowledge gaps and opportunities for intervention. Patient Education and Counselling. 2006 63;279-291. 2006 Sept 15 Epub.
Stacey D, Pomey M-P, O’Connor A, Graham I. Adoption and sustainability of decision support for patients facing health decisions: An implementation case study in nursing. BMC Implementation Science. 2006 Aug 24;1:17.
Mitra D, Jacobsen MJ, O’Connor A, Pottie K, Tugwell P. Assessing the decision support needs of women from HIV endemic countries regarding voluntary HIV testing in Canada. Patient Education and Counselling 2006 Jul 26; [Epub ahead of print]
Légaré F, O’Connor AM, Graham ID, Wells G, Tremblay S. Impact of the Ottawa Decision Support Framework on the agreement and the difference between patients and physicians decisional conflict. Medical Decision Making. 2006 Jul-Aug;26(4):373-90.
Laupacis A, O'Connor AM, Drake ER, Rubens FD, Robblee JA, Grant FC, Wells PS. A decision aid for autologous pre donation in cardiac surgery -- a randomized trial. Patient Education and Counseling 2006, 61, 458-466. 2005 Jul 14 Epub.
Piette J, Lange I, Issel LM, O'Connor A, Campos S. Use of Telephone Care in a Cardiovascular Disease Management Program for Type 2 Diabetes Patients in Santiago, Chile. Chronic Illness 2006, 2, 87-96.
Légaré F, O'Connor A, Graham ID, Saucier D, Côté L, Cauchon M, Paré L. Supporting patients facing a difficult health care decisions. Use of the Ottawa Decision Support Framework. Canadian Family Physician. 2006, 52:476-477.
Lalonde L, O'Connor AM, Duguay P, Brassard J, Drake E, Grover SA .Evaluation of a decision aid and a personal risk profile in community pharmacy for patients considering options to improve cardiovascular health: The OPTIONS pilot study. International Journal of Pharmacy Practice. 2006, 14:51-62.
O'Donnell S, Cranney A, Jacobsen MJ, Graham G, O'Connor AM, Tugwell P. Understanding and overcoming the barriers of implementing patient decision aids in clinical practice. Journal of Evaluation in Clinical Practice. 2006; 12, 2, 174-181.
Tugwell PS, Wilson AJ, Brooks PM, Driedger SM, Gallois C, O'Connor AM, Qualman A, Santesso N, Wale J, Wells GA. Attributes and skills of an effective musculoskeletal consumer. J Rheumatol. 2005 Nov;32(11):2257-61.
O'Connor AM, Stacey D. Should patient decision aids be introduced in the health care system? World Health Organization Health Evidence Network, Nov. 2005. http://www.euro.who.int/HEN
Stacey D, Graham I, O'Connor AM, Pomey M-P. Barriers and facilitators influencing call centre nurses' decision support for callers facing values-sensitive decisions: A mixed methods study. Worldviews on Evidence-based Nursing. 2(4):169-195, 2005.
Frize M, Yang L, Walker R, O'Connor A. Conceptual Framework of Knowledge Management for Ethical Decision-Making Support in Neonatal Intensive Care. IEEE Transaction on Information Technology in Biomedicine. 9(2):205-215, June 2005.
Woolf S, Chan EC, Harris R, O'Connor A, et al. Promoting informed choice: Transforming health care to dispense knowledge for decision making. Annals of Internal Medicine. 143:293-300, 2005.
Wilson KG, Aaron SD, Vandenheen KL, Hebert PC, McKim DA, Fiset V, Graham ID, Sevigny E, O'Connor AM. Evaluation of a decision aid for making choices about intubation and mechanical ventilation in chronic obstructive pulmonary disease. Patient Education and Counseling 57:88-95, 2005.
O'Connor AM, Llewellyn-Thomas HA, Barry Flood A. Modifying unwarranted variations in health care: shared decision making using patient decision aids. (A review of the evidence base for shared decision making) Health Affairs: 63-72, October 2004.
Lalonde L, O'Connor A, Drake L, Duguay P, Lowensteyn I, Grover SA. Development and pre-testing of a patient decision aid to assist pharmaceutical care in the prevention of cardiovascular disease. Pharmacotherapy 24(7):909-922, 2004.
Tugwell P, O'Connnor AM, Santesso NA. A 64 year old women with knee pain: Case outcome. British Medical Journal 329:38, July 2004
Tugwell P, O'Connnor AM, Santesso NA. A 64 year old women with knee pain: Case progression. British Medical Journal 328:1425, June 2004.
Tugwell P, O'Connnor AM, Santesso NA. A 64 year old women with knee pain: Case presentation. British Medical Journal 328:1362-1363, June 2004.
Murray MA, Miller T, Fiset V, O'Connor A, Jacobsen MJ. Decision support: helping patients and families to find a balance at the end of life. International Journal of Palliative Nursing 13(6):270-277, 2004.
Lalonde L, O'Connor A, Joseph L, Grover SA and The Canadian Collaborative Cardiac Assessment Group. Health-related quality of life in cardiac patients with dyslipidemia and hypertension. Quality of Life Research 13(4):793-804, 2004.
Note: More publications may be available in The Ottawa Hospital Library database and Pubmed (search by last name and initials). A complete publication list is also available in this CV.
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