Researchers push for better patient engagement

June 27, 2018

Research improves patient care, and a growing movement aims to engage and involve patients in the research process from start to finish. However, little is known about what meaningful patient engagement in research looks like. To find out, Dr. Dean Fergusson and his team looked at 2,777 trials published between 2011 and 2016. They found only 23 of these studies reported some form of patient engagement, showing much work needs to be done to promote true patient partnership in research. Almost a quarter of these papers involved patient partners from minority and marginalized populations. To help a study generate meaningful results, Dr. Fergusson’s team suggests that in addition to promoting further patient engagement, researchers should adopt a standard way of reporting this in research papers, so it can be studied more easily. Researchers at The Ottawa Hospital can get help with patient engagement from the Patient-Oriented Research (SPOR) group. This study was published in Research Engagement and Involvement.

Authors: Dean Fergusson, Zarah Monfaredi, Kusala Pussegoda, Chantelle Garritty, Anne Lyddiatt, Beverley Shea, Lisa Duffett, Mona Ghannad, Joshua Montroy, M. Hassan Murad, Misty Pratt, Tamara Rader, Risa Shorr, Fatemeh Yazdi

Funding: This research was possible because of generous donations to The Ottawa Hospital for Research to Improve Patient Care. The researchers have also received support from the Ontario SPOR SUPPORT Unit (OSSU), the Canadian Institutes of Health Research, and the Ontario Ministry of Health and Long-Term Care.

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