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Patient engagement

An increasing number of patients and family members are collaborating with health researchers on their research projects. Patient partners help ensure that research is relevant to patients, making it more likely to improve care. 

Known as patient engagement in research, The Ottawa Hospital is leading the way in this emerging practice, with the help of the Ottawa Methods Centre and the Strategy for Patient-Oriented Research Program

This page includes selected news stories about patient engagement, links to researchers working in this area and related resources. Learn more below.

Research News


COVID-19 research moving at ‘lightning speed’, thanks to generous community support
May 8, 2020 - Researchers at The Ottawa Hospital are working around the clock to advance more than 50 potentially life-saving research projects to support the world-wide effort to find better ways to treat and prevent COVID-19. Now, nine of these projects have bee
Patient engagement in health research: 10 tips from people with lived experience
February 25, 2020 - Individuals with lived experience who worked with Dr. Simon Hatcher’s team on suicide prevention research developed a list of 10 recommendations for researchers based on their experiences. The comic format uses scenarios to make these recommendations
How a lung cancer survivor advocate is helping advance research that will lead to early detection
February 7, 2020 - In September of 2013, Jill Hamer-Wilson caught something many of us tend to catch this time of year – a cold. While the cold eventually went away, a cough remained, and lingered for quite some time. Little did Jill know that this was an early sign of
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Researchers


Name Scientific appointment Diseases, conditions and populations of interest Research and clinical approaches
Alvarez, Gonzalo
MD, MPH, FRCPC
Scientist
(Clinical Epidemiology)
First Nations, Inuit and Métis Health, Health in disadvantaged peoples, Infectious disease, Lung disease, Population health, Tuberculosis Clinical research, Patient engagement
Boet, Sylvain
MD, PhD
Scientist
(Clinical Epidemiology)
COVID-19 Anesthesiology, Behaviour, Clinical trials, Knowledge translation and implementation research, Patient engagement, Psychology, Qualitative methods, Quality Improvement, Surgery, Systematic reviews, Translational research
Breau, Rodney
MD
Scientist
(Clinical Epidemiology)
Cancer, Kidney disease, Prostate cancer Clinical decision rules, Clinical research, Clinical trials, Cohort studies, Imaging, Patient decision aids, Patient engagement, Quality Improvement, Surgery, Systematic reviews, Transfusions
Brehaut, Jamie
PhD
Senior Scientist
(Clinical Epidemiology)
Behaviour, Health professional behaviour change, Health services research, Knowledge translation and implementation research, Patient decision aids, Patient engagement, Psychology, Psychometrics, Qualitative methods, Shared decision making, Surveys
Carrier, Marc
MD, MSc, FRCPC
Senior Scientist
(Clinical Epidemiology)
Cancer, Thrombosis / thromboembolism Clinical research, Patient engagement
Castellucci, Lana
MD, FRCPC, MSc
Scientist
(Clinical Epidemiology)
Thrombosis / thromboembolism Clinical research, Clinical trials, Cohort studies, Critical care, Patient engagement, Systematic reviews, Transfusions
Chen, Innie
MD, MPH, FRCSC
Associate Scientist
(Clinical Epidemiology)
Health equity, Population health, Pregnancy, Women's health Clinical research, Epidemiology, Health research methods, Patient engagement, Quality Improvement, Systematic reviews
Cowan, Juthaporn
MD, PhD, FRCPC
Associate Scientist
(Clinical Epidemiology)
Autoimmune disease, COVID-19, Infectious disease Immunization, Immunotherapy, Patient engagement
English, Shane
MD
Associate Scientist
(Clinical Epidemiology)
COVID-19, Septic shock, Subarachnoid hemorrhage, Traumatic brain injury Clinical research, Critical care, Patient engagement
Fergusson, Dean
PhD, MHA
Program Director and
Senior Scientist
(Clinical Epidemiology)
Cancer, COVID-19, Kidney disease, Septic shock, Vascular, heart and metabolic disease Clinical trials, Health services research, Health technology, Patient engagement, Pragmatic trials, Surveys, Translational research, Biostatistics, Clinical research, Cluster randomized trials, Cohort studies, Critical care, Health research methods, Qualitative methods, Quality Improvement, Systematic reviews, Transfusions
Graham, Ian
MA, PhD, FCAHS
Senior Scientist
(Clinical Epidemiology)
Knowledge translation and implementation research, Patient engagement
Grimshaw, Jeremy
MBCHB, PHD
Senior Scientist
(Clinical Epidemiology)
COVID-19 Behaviour, Cluster randomized trials, Health professional behaviour change, Health research methods, Health services research, Knowledge translation and implementation research, Patient engagement, Qualitative methods, Quality Improvement, Surveys, Systematic reviews
Hatcher, Simon
BSc MBBS MMedSc MD FRCPC FRANZCP MRCPsych
Scientist
(Clinical Epidemiology)
Anxiety, Brain and neuromuscular disease, COVID-19, First Nations, Inuit and Métis Health, Mental health, Traumatic brain injury, Depression, Health in disadvantaged peoples, Suicide Clinical research, Health economics, Health professional behaviour change, Health research methods, Health services research, Health technology, Patient engagement, Prevention, Qualitative methods, Clinical trials, Cluster randomized trials, Epidemiology, Psychology, Systematic reviews
Kekre, Natasha
BSc, MD, MPH, FRCPC
Associate Scientist
(Clinical Epidemiology)
Blood cancer, Cancer Cancer biotherapeutics, Cancer immunotherapy, Cell therapy, Clinical trials, Epidemiology, Immunotherapy, Patient engagement, Stem cells, Translational research, Transplantation, Viral therapy
Lalu, Manoj
MD, PhD, FRCPC
Associate Scientist
(Clinical Epidemiology)
Blood cancer, COVID-19, Heart disease, Stroke, Vascular, heart and metabolic disease Basic research, Cell therapy, Clinical research, Clinical trials, Disease models, Health research methods, Model organisms, Patient engagement, Regenerative medicine, Stem cells, Translational research
Pakhale, Smita
MD, FRCPC, MSc (Epi & Biostat)
Scientist
(Clinical Epidemiology)
COVID-19, First Nations, Inuit and Métis Health, Health equity, Health in disadvantaged peoples, Lung disease, Sickle cell anemia Clinical research, Clinical trials, Cohort studies, Epidemiology, Health economics, Health promotion, Health services research, Patient engagement, Pragmatic trials, Public health, Quality Improvement
Presseau, Justin
PhD
Scientist
(Clinical Epidemiology)
COVID-19 Artificial intelligence and data science, Patient engagement, Psychometrics, Qualitative methods, Quality Improvement, Behaviour, Psychology, Health professional behaviour change, Knowledge translation and implementation research, Health promotion, Cluster randomized trials, Surveys