Ottawa Hospital Research Institute

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Patient engagement

An increasing number of patients and family members are collaborating with health researchers on their research projects. Patient partners help ensure that research is relevant to patients, making it more likely to improve care.

Known as patient engagement in research, The Ottawa Hospital is leading the way in this emerging practice, with the help of the Ottawa Methods Centre and the Strategy for Patient-Oriented Research Program.

This page includes selected news stories about patient engagement, links to researchers working in this area and related resources. Learn more below.

Research News

	Nothing about me, without me: Engaging patients in clinical trials August 13, 2021 - It seems obvious – blindingly so – that patients, traditionally the subjects of clinical trials, should be involved as partners from the beginning. The benefits for patients are clear – an increased sense of control and the ability to learn about the
	Research study to improve patient care during pandemic March 17, 2021 - Meagan Gordon spent much of her high-risk twin pregnancy confined to a room at our hospital to keep her and her babies safe during the COVID-19 pandemic. Now, she's helping our researchers improve care.
	New scientist profile: Dr. Darine El-Chaâr aims to help pregnant parents and their babies March 10, 2021 - Dr. Darine El-Chaâr’s research focuses on three areas: increasing breast/chestfeeding among patients with diabetes, cannabis use in pregnancy, and COVID-19 in pregnancy.
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	App provides patients with their personalized risks after surgery February 17, 2021 - Patients who used a made-in-Ottawa app to calculate their risk of complications, hospitalization and death after surgery understood these risks better than patients who received standard care, according to a study published in the Canadian Journal of
	New scientist profile: Dr. Angela Cheung’s patients inspire her to investigate rare liver diseases January 27, 2021 - Dr. Angela Cheung understands why her patients with autoimmune liver diseases are frustrated. Little is known about these rare diseases, and treatments can often only delay, but not prevent, a liver transplant.
	Blueprint Excelerator helps move discoveries from the bench to the bedside November 6, 2020 - The Blueprint Translational Research Group was established in 2016 at The Ottawa Hospital, in collaboration with the Ottawa Methods Centre. Co-led by Dr. Dean Fergusson and Dr. Manoj Lalu, Blueprint developed an innovative model called the Excelerato
	COVID-19 research moving at ‘lightning speed’, thanks to generous community support May 8, 2020 - Researchers at The Ottawa Hospital are working around the clock to advance more than 50 potentially life-saving research projects to support the world-wide effort to find better ways to treat and prevent COVID-19. Now, nine of these projects have bee
	Patient engagement in health research: 10 tips from people with lived experience February 25, 2020 - Individuals with lived experience who worked with Dr. Simon Hatcher’s team on suicide prevention research developed a list of 10 recommendations for researchers based on their experiences. The comic format uses scenarios to make these recommendations
	How a lung cancer survivor advocate is helping advance research that will lead to early detection February 7, 2020 - In September of 2013, Jill Hamer-Wilson caught something many of us tend to catch this time of year – a cold. While the cold eventually went away, a cough remained, and lingered for quite some time. Little did Jill know that this was an early sign of
	Ottawa hosts hugely successful Canadian Cancer Research Conference November 27, 2019 - Nearly 900 researchers, clinicians, trainees and members of the public recently came together for the Canadian Cancer Research Conference, held for the first time in Ottawa.
	aSAH survivor and her daughter help advance stroke research October 23, 2019 - When 61-year-old Debi Borbridge had an aSAH, a rare form of stroke, little did she know that two years later she and her daughter would be helping to shape the future of research in this field.
	Ottawa a “hotbed of patient partnerships in research” September 27, 2019 - The Ontario SPOR Support Unit’s summer newsletter showcases how Ottawa has become a “hotbed of patient partnerships in research.” Three stories demonstrate how researchers at The Ottawa Hospital are partnering with patients and caregivers to improve
	Dr. Dawn Stacey co-hosts International Shared Decision Making Conference August 14, 2019 - Dr. Dawn Stacey co-hosted the International Shared Decision Making Conference in Quebec City with Dr. France Légaré. More than 400 people from 22 countries participated in the conference, which focused on Patient-Oriented Shared Decision Ma
	Dr. John Bell wins public and patient engagement award April 15, 2019 - Dr. John Bell won the inaugural European Society for Gene and Cell Therapy Public and Patient Engagement Award.
	Researchers push for better patient engagement June 27, 2018 - Research improves patient care, and a growing movement aims to engage and involve patients in the research process from start to finish. However, little is known about what meaningful patient engagement in research looks like. To find out, Dr. Dean F

Researchers

Name	Scientific appointment	Diseases, conditions and populations of interest	Research and clinical approaches
Alvarez, Gonzalo MD, MPH, FRCPC	Scientist (Clinical Epidemiology)	First Nations, Inuit and Métis Health, Health in disadvantaged peoples, Infectious disease, Lung disease, Population health, Tuberculosis	Clinical research, Patient engagement
Boet, Sylvain MD, PhD	Scientist (Clinical Epidemiology)	COVID-19	Anesthesiology, Behaviour, Clinical trials, Knowledge translation and implementation research, Patient engagement, Psychology, Qualitative methods, Quality Improvement, Surgery, Systematic reviews, Translational research
Breau, Rodney MD	Scientist (Clinical Epidemiology)	Cancer, Kidney disease, Prostate cancer	Clinical decision rules, Clinical research, Clinical trials, Cohort studies, Imaging, Patient decision aids, Patient engagement, Quality Improvement, Surgery, Systematic reviews, Transfusions
Brehaut, Jamie PhD	Senior Scientist (Clinical Epidemiology)		Behaviour, Health professional behaviour change, Health services research, Knowledge translation and implementation research, Patient decision aids, Patient engagement, Psychology, Psychometrics, Qualitative methods, Shared decision making, Surveys
Carrier, Marc MD, MSc, FRCPC	Senior Scientist (Clinical Epidemiology)	Cancer, Thrombosis / thromboembolism	Clinical research, Patient engagement
Castellucci, Lana MD, FRCPC, MSc	Scientist (Clinical Epidemiology)	Thrombosis / thromboembolism	Clinical research, Clinical trials, Cohort studies, Critical care, Patient engagement, Systematic reviews, Transfusions
Chen, Innie MD, MPH, FRCSC	Associate Scientist (Clinical Epidemiology)	Health equity, Population health, Pregnancy, Women's health	Clinical research, Epidemiology, Health research methods, Patient engagement, Quality Improvement, Systematic reviews
Cowan, Juthaporn MD, PhD, FRCPC	Associate Scientist (Clinical Epidemiology)	Autoimmune disease, COVID-19, Infectious disease	Immunization, Immunotherapy, Patient engagement
English, Shane MD	Scientist (Clinical Epidemiology)	COVID-19, Septic shock, Subarachnoid hemorrhage, Traumatic brain injury	Clinical research, Critical care, Patient engagement
Fergusson, Dean PhD, MHA, FCAHS	Program Director and Senior Scientist (Clinical Epidemiology)	Cancer, COVID-19, Kidney disease, Septic shock, Vascular, heart and metabolic disease	Clinical trials, Health services research, Health technology, Patient engagement, Pragmatic trials, Surveys, Translational research, Biostatistics, Clinical research, Cluster randomized trials, Cohort studies, Critical care, Health research methods, Qualitative methods, Quality Improvement, Systematic reviews, Transfusions
Graham, Ian MA, PhD, FCAHS	Senior Scientist (Clinical Epidemiology)		Knowledge translation and implementation research, Patient engagement
Grimshaw, Jeremy MBCHB, PHD	Senior Scientist (Clinical Epidemiology)	COVID-19	Behaviour, Cluster randomized trials, Health professional behaviour change, Health research methods, Health services research, Knowledge translation and implementation research, Patient engagement, Qualitative methods, Quality Improvement, Surveys, Systematic reviews
Hatcher, Simon BSc MBBS MMedSc MD FRCPC FRANZCP MRCPsych	Scientist (Clinical Epidemiology)	Anxiety, Brain and neuromuscular disease, COVID-19, First Nations, Inuit and Métis Health, Mental health, Traumatic brain injury, Depression, Health in disadvantaged peoples, Suicide	Clinical research, Health economics, Health professional behaviour change, Health research methods, Health services research, Health technology, Patient engagement, Prevention, Qualitative methods, Clinical trials, Cluster randomized trials, Epidemiology, Psychology, Systematic reviews
Kekre, Natasha BSc, MD, MPH, FRCPC	Associate Scientist (Clinical Epidemiology)	Blood cancer, Cancer	Cancer biotherapeutics, Cancer immunotherapy, Cell therapy, Clinical trials, Epidemiology, Immunotherapy, Patient engagement, Stem cells, Translational research, Transplantation, Viral therapy
Lalu, Manoj MD, PhD, FRCPC	Associate Scientist (Clinical Epidemiology)	Blood cancer, COVID-19, Heart disease, Stroke, Vascular, heart and metabolic disease	Anesthesiology, Basic research, Cell therapy, Clinical research, Clinical trials, Disease models, Health research methods, Model organisms, Patient engagement, Regenerative medicine, Stem cells, Translational research
Le Gal, Gregoire MD, PhD	Senior Scientist (Clinical Epidemiology)	Thrombosis / thromboembolism	Clinical decision rules, Clinical research, Clinical trials, Epidemiology, Patient engagement, Peri-operative medicine
McIntyre, Lauralyn MD, MHSc, FRCPC	Senior Scientist (Clinical Epidemiology)	Septic shock	Cell therapy, Clinical research, Clinical trials, Critical care, Patient engagement, Pragmatic trials, Stem cells, Transfusions, Translational research
McIsaac, Daniel MD, MPH, FRCPC	Scientist (Clinical Epidemiology)	Aging, Frailty, Health in older peoples, Pain, Population health	Anesthesiology, Artificial intelligence and data science, Big data, Biostatistics, Clinical research, Clinical trials, Cohort studies, Digital and mobile health, Epidemiology, Health services research, Patient engagement, Peri-operative medicine, Public health, Quality Improvement, Risk assessment, Surgery, Systematic reviews
Moher, David PhD	Senior Scientist (Clinical Epidemiology)		Journalology, Knowledge translation and implementation research, Patient engagement, Quality Improvement, Rapid reviews, Systematic reviews
Pakhale, Smita MD, FRCPC, MSc (Epi & Biostat)	Scientist (Clinical Epidemiology)	COVID-19, First Nations, Inuit and Métis Health, Health equity, Health in disadvantaged peoples, Lung disease, Sickle cell anemia	Clinical research, Clinical trials, Cohort studies, Epidemiology, Health economics, Health promotion, Health services research, Patient engagement, Pragmatic trials, Public health, Quality Improvement
Presseau, Justin PhD	Scientist (Clinical Epidemiology)	COVID-19	Artificial intelligence and data science, Patient engagement, Psychometrics, Qualitative methods, Quality Improvement, Behaviour, Psychology, Health professional behaviour change, Knowledge translation and implementation research, Health promotion, Cluster randomized trials, Surveys
Seely, Jean MDCM, FRCPC	Clinician Investigator (Clinical Epidemiology)	Breast cancer, Cancer, Health equity, Population health, Women's health	Clinical trials, Cohort studies, Health technology, Imaging, Patient engagement, Public health, Quality Improvement, Surgery
Stacey, Dawn RN, PhD, CON(C)	Senior Scientist (Clinical Epidemiology)		Clinical research, Clinical trials, Health professional behaviour change, Health research methods, Health services research, Knowledge translation and implementation research, Patient decision aids, Patient engagement, Qualitative methods, Quality Improvement, Shared decision making, Surveys, Systematic reviews
Taljaard, Monica PhD	Senior Scientist (Clinical Epidemiology)		Biostatistics, Clinical decision rules, Clinical trials, Cluster randomized trials, Cohort studies, Epidemiology, Health professional behaviour change, Health research methods, Health services research, Knowledge translation and implementation research, Patient engagement, Quality Improvement
Thavorn, Kednapa BPharm, MPharm, PhD	Senior Scientist (Clinical Epidemiology)	Cancer, COVID-19, Diabetes, Gastrointestinal disease, Glaucoma, Global health, Health in disadvantaged peoples, Health in older peoples, HIV, Immigrant and refugee health, Population health, Septic shock, Stroke, Thrombosis / thromboembolism, Vision	Clinical research, Cohort studies, Epidemiology, Health economics, Health research methods, Health services research, Knowledge translation and implementation research, Patient engagement, Pharmacy, Public health, Quality Improvement, Systematic reviews
Tugwell, Peter O.C., MD, FRCPC	Senior Scientist (Clinical Epidemiology)	Arthritis, Chronic disease, Global health, Population health	Clinical research, Epidemiology, Knowledge translation and implementation research, Patient engagement, Public health, Systematic reviews